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Wednesday, June 8, 2011

New Specialist in Vermont

Friday was the end all, be all. I had been suffering from autism-like symptoms for just days, since the Saturday before. Yet still I was bad enough, pacing in my wheelchair, screaming at the ceiling, talking a million miles per hour, and sometimes not even making sense with my mumbling, to the point of keeping myself up at night, that a doctor in west Vermont was willing to fit me in his busy schedule that week. After hopeful calls to Dr. J in Connecticut, the world's only pediatric Lyme specialist, we got a hold of the doc. himself and he said his practice    was closed to new patients but he recommended the doctor in Vermont who was familiar with Autism and Lyme. He fit us in around lunch time Friday and it was a hectic 3 1/2 hour car ride there. The whole time I chattered and screamed out the window and I don't even remember the trip. Talk about a long car ride, I'm sure both my parents and my boyfriend Tyler were ready to leave me in Vermont. The Doctor saw me throughout the 2 hours in his office and prescribed the step we are going to take before we try IV Rocephin treatment. I was prescribed anti fungals short term, anti inflammatorys for my brain, a medicine in the same family of Rocephin called Onnicef,  along with Zithromax and Plaquenil, even B supplements. I am also on a Gluten Free, Casein free, Caffeine Free, low Sugar diet, see post about New Diet. This should be a fun trip and the hope is to reduce neurological inflammation and increase my energy levels.


  1. Could you tell us who and where the doctor is in Vermont?


  2. I live in Burlington Vt area and very sick with lyme, what is the new Doctor you see.

  3. What is the name of the doctor in vt- it is urgent I was misdiagnosed for 15 years and have encephalitis now I need a doctor who will put in my picc line in this state. I have a script for the picc order from NJ but the doctors so far told me they don't believe in chronic Lyme so they won't fill the picc order.

    1. Sadly, I can't give out his name online, and I will do another post explaining why within the week. However, helps direct people to Lyme friendly and literate physicians in the Continental US, so you can go to their web page to receive guidance. Otherwise you can email me through and we can discuss it more. Thanks.


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