C-PAP Machine

My latest little update. After almost 1/2 year, 5 months of fighting the ignorant Doctors and insurance company, I got the letter and now received the C-Pap for my condition called Sleep Apnea. It is most likely a symptom of the Lyme disease or co-infections, but it's something to treat and so I'm hopeful. I received the machine and mask set to level 6 (4-20 levels I believe) to keep air flowing in and out at night. If it helps a restful sleep, there is a chance I will heal faster because I'll be more rested. MAYBE even less fatigue!! I can't wait, and I am also worried that it will not help and will hurt really bad...

The only person I can think of with the same thing that would understand the awkwardness is my grandmother in GA. who suffers 'Fibromayalgia', sleep apnea, and other aches-- And she said it was just a get-used to process.

So that's what's up, so far!

2nd sleep study

This post is about the second sleep study I went back for. It was hard on me to drag my tired body all the way to Dartmouth, a 1 1/2 hour drive! but I didn't have a choice. When I got there I was proud to discover I had the same night tech as last time, and this time he even hooked me up. He showed me how to use the mask, and what it did. It made me look funny... really funny. I thought it was okay at first. As I lie down and tried to sleep, after about 2 hours I discovered that I had forgotten my bedtime pills, I was hungry, Thirsty, needed a straw and some water, and I had to use the bathroom. Might as well get it all in at one pit stop. I also had to change the mask, it was killing my nose. All night long I slept maybe about 4 hours, and went through at least 6/7 masks. They all hurt my nose, and were very uncomfortable. Plus I was in a different environment, my bed was not elevated as it is at home for my acid reflux, and I was hooked up so tightly I couldn't move a muscle, or at least that's what it felt like. It was also very creepy that this guy was watching my every move through a camera, and I could hear it zooming in and out...... Freaky!

At least my mom slept well. even though she was right next to me in a tiny bed that was hard as a rock, I could hear her snoring all night long. Or pretty much all night. Whenever Wayne(night Technician) would come in she'd get up. I was surprised that she slept at all, when she woke in the morning to tell me how uncomfortable she was, may I add I was pretty jealous, I told her she slept just fine, and I don't think I slept any REMs. So I woke early, did the traditional tech test, make sure everything was working. I got ready for the day, scrubbed the gook off my body and out of my hair....Yucky stuff, I have to admit.

I was suppose to get my c-pap machine within a week. Here I am later and they say the insurance company is not approving it yet. I will have mine set at level of pressure 6. It's going to be prescribed ASAP and when I get it I'll go back to the sleep MD for a little check-up. My life is so incredibly busy, even though I am so fatigued, it still goes on.

1st sleep study

After not sleeping well for a very long time, I finally had a sleep study. They said I have obstructive sleep apnea. This can be genetic. My grandmother has it. This can also be a symptom of Lyme or co-infections. My LLMD thinks that when I'm treated successfully it will go away. I hope so. I have to get a machine and go back for a 2nd sleep study to set the machine and see how it works.

Besides that, I have trouble falling asleep and sometimes lay awake for 2-6 hours per night.

I've elevated my head (the bed inclines) because of the acid reflux. I've tried soft music, lavender, softer bed, melatonin, fans, just everything to get a good night sleep. It seems I feel my worse at night which made it hard to attend school, getting up at 6:30am.
stay posted for second study and more...