On my own calendar I have personal things like prom, and some Lyme awareness events I've put together. I've planned a school wide assembly with guest speakers at both my middle and high schools, presentations to science classes, and even a, Under Our Skin movie showing at the high school cafeteria. Its a great chance for me to speak out about how sick I am and help people grasp the basics of this terrible disease.
Wednesday, April 6, 2011
Lyme Awareness Month is Approaching
Lyme Disease Awareness Month is next month, May, which means that the support groups are ready to start events for it. My local Lakes Region Lyme Support group is meeting with the Governor soon for a photo op of him signing a proclamation that May is Lyme awareness month. On top of that there is continual work occurring on a NH bill to pass legislation that will protect doctors from treating Chronic Lyme Disease with long-term antibiotics. There is a Lakes Region Lyme Disease walk approaching where support members will walk through Laconia wearing their lime green to raise eyebrows. The Wall of Hope is approaching where Lyme members and support people will gather to attract attention and hand out information at the state house in Concord, NH. And on top of it all there is a very large conference with guest speakers and informational handouts along with a representative from Igenex Lab towards the end of May.
April 6, 2011
Hello again. I just wanted to update everyone on how miserable I am. I have been out of school for a solid 2 weeks and getting behind on my honors classes. My stomach has been agitated and I'm not exactly sure whats going on down there but I had another if not a few other Ovarian cysts that ruptured yesterday while I was in the shower. It hurt so bad that I was curled up in a ball on the shower floor almost unconscious, dizzied with the pain. The worst part was it didn't feel like pain but an overall cramp feeling that just disabled me. I have never felt pain like that before and after hobbling to my bed soaking wet and covered in soap, it subsided after 10 minutes. Now i just have general pain and nausea and even acid reflux from my shoulders to my hips. My lower abdomen hurts and aches and stabs when I move, and hurt worse when I lay on my side.
On top of that I've started having a general crampy feeling in other areas. My neck is achy, my hand started cramping up and spasming along with my feet. I feel almost like I have carpal tunnel, tennis elbow, rotator cuff issues, etc. It all just piles up and wears me down. I have sudden bursts of wanting to cry from a Lyme inflicted bout of depression and anxiety. I cant sleep 3/4 of the night and I lie staring at the ceiling. I've tried everything, darkening shades, increasing melatonin and valerian root, sound machines, the radio, keeping the cats out, sitting up more, laying down more, reading before bed, turning off all lights, turning on a light, drinking something warm, clearing my nose out, the list goes on. However, I just stare at the roof for hours on end.
Friday, April 1, 2011
Amazing new WebSite!
Lyme411, the informational center for Lyme Disease. Lyme 411 is the local Lakes Region Lyme Disease Support Group's page, the support group I attend, and the launcher of this site. Check it out! Join the group on either facebook, through e-mail (lyme411@groups.facebook.com), in the yahoo groups section, or here:
www.LYME411.org
:D Copy and Paste link into URL! :)
Dare to be a Daniel
My faith has been one thing I vow to keep up with during my time as a Lyme sufferer and beyond. It gives me strength, hope, purpose, wisdom, and more. I recently found a new program called Dare to be a Daniel for ages 9-14. It's a cute and eye opening way to teach kids how to share the word of God and tell their friends that Jesus loves them! If you are interested at all check it out and create a username. It's confusing at first but the site will bring you through virtual video stories and is quite eye opening. It hits the kids right where they need it most: the FAITH!
150 ALS Patients Positive!
This is the newest and greatest article on the market. It explains how in 2009 mosquito's were found to carry Lyme spirochetes, and how likely it is that 150 ALS patients tested positive for lyme 100% of the time. 100%!!!! Please take the time to read it!
Copy and Paste link into URL :)
New Video, AMAZING
I didn't realize Lyme was for humans, ticks travel on birds, or ticks can become immune to deet! Is this what you're thinking? The video scrolls a little fast but this new YouTube video is extremely educational on Lyme, and shares a young girl named Victoria's story as well. So sad :( Please take ten quick minutes to watch and learn! It could save you, or just open your eyes!
Copy and Paste link into URL :)
New Statistics
Lyme Disease is a fast growing illness, reported at epidemic levels, and the CDC admits that it is under reported, though they do nothing to change it. Recently Under Our Skin, the makers of the amazing Lyme Documentary, Posted newer updated information on the numbers of diseases in the U.S. and Here they are:
http://www.facebook.com/l.php?u=http%3A%2F%2Funderourskin.com%2Fblog%2Fwp-content%2Fuploads%2F2011%2F01%2FLyme_Cases_1982-2009.jpeg&h=3647a
Copy and Paste link into URL. :)
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