When the show began you could hear a pin drop, but the minute my face came across the screen for a small advertisement at the beginning, I was squealing and so thrilled to see myself on TV. Anybody would be. However I was nervous that the editors may try to make it look like I was crazy, healthy, and needed to be off of medicine. They didn't do that. The show was a gracious 10 minutes of me time and it opened many eyes, connecting foreign accent syndrome with Lyme Disease for the first time and bringing up coinfections on national television. Here is a link for those who did not get to see it:
http://abc.go.com/watch/2020/SH559026/VD55204215/2020-518-medical-mysteries
For the rest, we all agree. The time frame was stressed, an hour would have been nice, but they did a good job covering my story with the time they had. They concentrated a lot on prom and how there was hope for the future instead of my current lacking health, but I appreciate the producers soo much for taking my story on and working with me last minute. Even coming to NH for the entire interview process and fitting it in for two days. It was a blessing to work with them and the film crew, and a bigger one to see the result. Already, five others who thought they were alone have contacted me, saying they had accents too! I am thrilled to open many people's eyes and to connect with people to let them know they are NOT alone. Most of the world is on their side, and I'm an email away!
Showing posts with label Lou Gehrig Disease. Show all posts
Showing posts with label Lou Gehrig Disease. Show all posts
Saturday, May 19, 2012
Friday, April 1, 2011
150 ALS Patients Positive!
This is the newest and greatest article on the market. It explains how in 2009 mosquito's were found to carry Lyme spirochetes, and how likely it is that 150 ALS patients tested positive for lyme 100% of the time. 100%!!!! Please take the time to read it!
Copy and Paste link into URL :)
Thursday, June 11, 2009
Bicillin Injections
Last time I posted I was on a cocktail of herbs. I was taking about 35 pills daily. We determined that i was not getting the right improvement from the 'just herb' regimen, and we have chosen to add something to that!
I am now doing Penicillin Injections, which are a painful way of doing things but for some people can be more effective. They are deep intramuscular shots, so they are not like the oral antibiotics and are believed to be more concentrated, and they enter the body differently. might as well try it, right? Well this I have found to be pesky. I don't feel any better, my butt or 'hip' is always sore on one side or the other, and it's a shot every other day during the week! [The actual shot (for those who wonder) has a 1 1/2 in. needle, 2 CC.s or 2 ml. of thick ABX fluid, and is 'deep' muscular, meaning it is a very large shot. To give a comparison, the painful Tetanus shot is 1/2 CC of that painful fluid, this is four times that of a painful thick fluid. it also has 1/2 in. longer needle..... You can tell it is painful and long.] I requested for us to try the intravenous antibiotics, meaning the PIC Line, or IV fluid that goes directly into either my vein, or my heart. However we must try every other approach first!
I will be going back to my LLMD on the 17, so we'll see what he says about our check-up from the injection therapy.
Elaina
I am now doing Penicillin Injections, which are a painful way of doing things but for some people can be more effective. They are deep intramuscular shots, so they are not like the oral antibiotics and are believed to be more concentrated, and they enter the body differently. might as well try it, right? Well this I have found to be pesky. I don't feel any better, my butt or 'hip' is always sore on one side or the other, and it's a shot every other day during the week! [The actual shot (for those who wonder) has a 1 1/2 in. needle, 2 CC.s or 2 ml. of thick ABX fluid, and is 'deep' muscular, meaning it is a very large shot. To give a comparison, the painful Tetanus shot is 1/2 CC of that painful fluid, this is four times that of a painful thick fluid. it also has 1/2 in. longer needle..... You can tell it is painful and long.] I requested for us to try the intravenous antibiotics, meaning the PIC Line, or IV fluid that goes directly into either my vein, or my heart. However we must try every other approach first!
I will be going back to my LLMD on the 17, so we'll see what he says about our check-up from the injection therapy.
Elaina
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