Picc Pain Passed

Its the third week of Rocephin treatments now. I notice no improvement other than the pain I had shooting down my elbow from the Picc procedure has diminished. It started getting better after 5 days of heat packs and ibuprofen. I'm much more comfortable with moving and using the arm now, and even sleeping on it. Though it took me 2 weeks to get a real shower and the wrapping it up process was not fun, I have adjusted. My mom does the IV treatments every 12 hours for 4 days a week. Shes comfortable with keeping it clean and we are careful not to get the tip dirty. We have a fold up light weight side table or TV tray that we cover with the medical sheet and use for our treatment area. When the weekly VNA (visiting Nurse) comes to change the bandage she likes to have an area to set up shop. We noticed problems with the little blue line kinking because the butterfly was not up high enough to keep it straight, and therefor I had troubles with the IV treatment for a week, but she fixed it so it doesn't kink and I can do things while getting my treatment. Having the Picc in is not the end of the world, its a challenge to not get it wet in the middle of the summer but it is manageable. Now I'm just trying to do visualizations and rest enough to let the medicine do its job.

Relapse and New Treatment- Pulse Therapy

Since the fall, I have been feeling the brunt of the first true Lyme relapse that I've encountered. i ignored the pain and fatigue and ran through it, and skied through it, and raced through it, and just kept pushing. Then I embraced the Ovarian Cyst surgery, and I just haven't recovered from that. i have been on Rifampin, Amoxy, and Minocin since the fall, and I'm not getting any better. i've exempt myself from a diet and sleep and overstressed about schoolwork and projects and running for student council president for next year. Now my whole body is breaking down and I'm at the end of my rope. I've dealt with depression, passing out, nausea, cysts, inflammation, fatigue, pain in joints and muscles, sleep issues, cramps, tingling, brain fog, euphasia (forgetting words), and so much more. My headache is back full force, and with all the New Hampshire snow storms I'm suffering from the barometric scale dancing around. I have schoolwork shooting out my ears from honors courses and I find it hard to last a full day. I've only run four days since the weather has started to permit it and I feel like I've killed my legs. I'm just sore, tense, and sick. I know other Lymies feel my pain and discomfort, and I've been so concentrated on looking and acting normal and embracing opportunities that I never had when i was home schooled from the Lyme that I just wish I could be 100% forever. I'm very distressed from the depression and I'm let down at the relapse. I've tried to have a positive opinion on things, and I've relied on books and bible studies and friends and family and quotes and positive feedback and praise to keep me going this whole time. Now it's just dissolving at the seams and I feel like crying. I try not to show this side of me to the world, I don't want them to think I'm weak. I push through a lot and this is something that whether I like it or not, I will push through as well. When I returned to the Lyme Doctor a few days ago I told him this, and we decided on a new treatment plan. Dr. Burrascano from NY treats Lyme patients with Pulse Therapy. The idea is that Lyme hides in the body, and by starting med.s for a few months and either switching antibiotics or stopping, then starting again you can kill multiple forms, stages, and types of Lyme Disease. I stopped all my medicines that are pushing the Lyme into hiding, and we are waiting for me to get as sick as possible. When the bugs are out of hiding in a few weeks we won't worry about slowly building up, we will start all four abx (Rifampin, Plaquenil, Minocin/Minocycline, and Amoxycillin) at once and hit this bug like a nuclear bomb. I have hope that this will work, even though I have a feeling the herx reactions will be tough. All I need now is prayer.